Often times children with disabilities are consumed by labels (ADD, IEP, ASD, BIP...) and others do not understand that there is more to these children than their disabilities. But when child has a visible or obvious disability, the struggle for parents may be magnified. As Rosen writes in his article, "Seeing the Child, Not the Disability," Perhaps this is why I was so shaken by what I had just heard, about mother and son being shunned by others who were unable to see the son she loves as a child instead of as a condition or disease. .
You can read more of the article "Seeing the Child, Not the Disability," at http://well.blogs.nytimes.com/2014/07/24/seeing-the-child-not-the-disability/?_php=true&_type=blogs&_r=0