Sunday, October 11, 2015

I Want to Inspire People

When I learned that my oldest son had autism,  I felt very alone and very scared. Although I worked with children with disabilities as a special education teacher, it wasn't the same as facing the prospect of raising a child with a disability. I have always tried to look at situations with an open mind, but I began to wonder what it was like for parents of children with disabilities who had no prior knowledge of the ins and outs of special education,  disability rights, advocacy, etc. I decided pretty early on that I wanted to be a voice for those who were not able to raise their own voices. I want to support parents and families as they navigate their lives raising children with special needs. I may not have all of the answers, but I'm going to give it everything I have.

Neuro Tribes: How autism has been badly misunderstood | New Scientist

Neuro Tribes: How autism has been badly misunderstood | New Scientist

Friday, October 9, 2015

Dear Parents of "Normal" Kids

This is a letter addressed to parents of "normal" kids. I felt compelled to write this letter after reading about the neighbors suing the parents of a boy with autism whom they felt was disrupting their community. Not only was the boy with autism a menace, he was inconveniencing the other children and their parents with his social behaviors or lack there of. The fact that it has resulted in legal action through our court systems truly (and unfortunately) represents the times in which we live. Do they have a right to protect their children? Yes! Was this the  right way to go about it?  I doubt it! But even more disturbing is the manner in which we go about our lives in this society unaffected by the world around us until a situation happens to us. I always ask the million dollar question, as I would to the neighbors in this community or the countless others whose comments and actions have been nothing short of irresponsible: what if it was your child? It is easy to scoff at the efforts of others when we are on the outside looking in. But what if one day your normal child became impaired due to an illness or accident completely out of his control. What if the word "disabled" became your reality and you had to spend every single day fighting for your child's right to be a child who just happened to face difficulties? Some would argue that they would handle things a certain way but you can never really know for sure until you've been dealt a hand that leaves you vulnerable. There is no parenting manual to tell parents of children with disabilities how they should manage in a world focused on perfection and normal. Maybe the parents of this particular boy could have done things differently, as hindsight is certainly 20/20; the same could be said for the neighbors who thought it was perfectly okay to create a safety plan for a child with a disability based on their inexperience with children with disabilities. But honestly, you do the best you can under the circumstances. This isn't to say that any child--with or without disabilities--has the right to harm anyone else; but to assume that these parents were not doing all that they could do to manage the situation isn't a fair assessment. Parents of any child do what they think is best and try to learn things along the way. The fact that these parents are willing to file a lawsuit indicates to me that if they did, in fact, face the reality of having a child with a disability, they would stop at nothing to see that their child was treated fairly...which is what they should want for other children as well.

Sensory Overload

Sensory overload can be triggered by any external or internal factors that can cause a child to become overwhelmed. Whether it's crowds of people,  loud noises, bright lights or all of the above, it is important for parents to recognize their child's triggers and explore ways in which to decrease or eliminate subsequent behavior. Planning, not punishment, is the idea way of approaching the issue. For example, my youngest son would completely go into a full-fledged meltdown whenever we would go into a Walmart, screaming, crying and even throwing things off the shelves. I was at a loss as to what was prompting the behavior until someone asked me if I thought it was sensory overload. The thought had never crossed my mind but I decided to eliminate Walmart from our outings and opted for the more scaled down Walmart market. Believe it or not it worked. Not only do we manage to get our grocery shopping done, but I am still able to expose him to real-life social experiences that I feel are important for getting him prepared for independent living. It may take some trial and error, but understanding and addressing sensory overload is about finding ways to make our children's lives easier in the long run.

Monday, October 5, 2015

Bullying and Autism

In honor of Bullying Prevention Month, it is important to shine the spotlight on bullying and autism.  Bullying can happen to anyone, regardless of whether they have a disability or not. However,  children with disabilities ( particularly autism) may be more likely to be victimized because of their differences. Because autism is the fastest growing disability category thus far, we need to create opportunities for awareness, especially among school-age children.  It is important that we advocate for programs like character education to build positive relationships and support acceptance among peer groups.

Saturday, October 3, 2015

Early Detection of Autism

It is important for parents to know the signs of autism. Early detection and interventions can significantly improve the outcomes of children with autism.