Showing posts with label support. Show all posts
Showing posts with label support. Show all posts

Thursday, June 16, 2016

Support a Cause

I use social media quite a bit for autism awareness. I am committed to the cause and will continue to be proactive about disability support and acceptance. However, I have noticed that people will respond positively to selfies and pictures of random events but remain radio silent when it comes to postings about donating or bringing awareness or promoting acceptance.

I knew when I began this journey as an advocate, I would experience bumps along the way. I get that it's hard for others to identify with disability awareness, especially if it's never affected them personally, but I guess I was just keeping hope alive...

Monday, April 25, 2016

Autism Awareness Month???

So April has has been slated as Autism Awareness Month. there is even a big deal made of "Lighting It Up Blue" at major landmarks around the world yet because we going to do. However this year has not seen the same level fanfare from years past. In fact there is little evidence that autism awareness is on anyone's mind these days.

Many people had been opposed to even acknowledging April as autism awareness month because of its association with the controversial organization Autism Speaks. Autism Speaks has been criticized for calling a disease that can be cured ( something that I personally do not believe). But regardless of one's beliefs about an organizations mission statement, the fact still remains that autism had been brought to the forefront in a spectacular way and it was up to us to carry the torch and speak truth into dialogue that would certainly arise about autism and NOT leave it to others to tell our stories or speak our truths!

My fear is that now we are taking steps back instead of moving forward in our efforts to raise awareness and promote acceptance of individuals with autism.

Wednesday, April 20, 2016

Autism Panel:Spotlight on Autism

We are very excited about our first panel presentation to discuss autism in the home, school, and community. My Life My Autism was created for this very purpose...to bring autism into the forefront by opening up dialogue about how it impacts the person with the diagnosis as well as their loved ones.

This is only the beginning!

Saturday, April 16, 2016

Autism Panel

We are SO excited about our upcoming panel presentation at NC A & T State University! Hopefully this is the start of something that will continue to grow and have a positive impact on the autism community.

Autism Awareness Month

My hope is that one day autism awareness is not just a moment in April that we cast blue lights and wear our best Autism Awareness gear; but that we promote and support awareness all year long through social media, research endeavors, community outreach and open discussions.

Wednesday, March 30, 2016

The Early Bird Initiative~365 Days a Year

As April approaches, so does the annual "Light It Up Blue" campaign created by Autism Speaks to raise awareness about autism in communities across the world. I have always maintained (and will continue to do so) that we need more research devoted to the lives of people with autism, not just causes of autism.

With millions of people living with autism,
both directly and indirectly, learning about the causes of autism is not as  relevant as issues like: early diagnosis, interventions, wandering, transition, healthcare, education...and the list goes on.

Those of us who consider ourselves to be advocates/activists should actively use our voices not only during the month of April, but the other 11 months of the year as well.

So let's commit ourselves to raising autism awareness 365 days a year!

Wednesday, March 23, 2016

Autism Awareness, Acceptance & Support

Check this out on Pinterest. My Life My Autism - www.pinterest.com/drmarquisgrant4/my-life-my-autism/?s=3&m=blogger

Saturday, February 6, 2016

My Life My Autism

Check out my updated website at www.mylifemyautism.com.

Project AuSome

Let's start a dialogue about how we can support individuals with autism at home, school, and in the community.

There is a lot of research devoted to the causes of autism,  but we also need to focus on other aspects such as early diagnosis, early interventions, transition into adulthood, financial aid just to name a few.

In my opinion, researching causal factors does little to help the millions of children and adults who are diagnosed with autism.  I personally think some of the funding should be used to create resources that will help cover the cost of daily living expenses like therapy, academic support or job preparation...the list goes on.

It's time we speak up and speak out!

Thursday, February 4, 2016

Let's Kick Things Into Shape

I've said it before. We can't just sit back and wait for others to take action. It's up to each and every one of us to push for what is right, what is fair and what is just.
When my children were diagnosed,  I realized the importance of advocacy when I started to question their respective places in our society. Ideas like acceptance and awareness began to take shape and I understood, for the first time in my life, what it truly meant to fight.

So I'm fighting for all children,  all individuals with autism...with different abilities. I'm fighting for a society where the word normal is not used to describe human beings. A society where acceptance is not optional. A society where my children are not outsiders standing on the outside looking in.

Things don't have to be the way they are. We can kick things into shape...

Friday, January 22, 2016

My Life My Autism

Please check out my website : www.mylifemyautism.com

I also want to encourage you to use social media as a means of creating awareness and advocating in support of whatever cause that is close to your heart. Start a blog, create a website...do whatever is necessary to bring the important issues into the spotlight. 

Do you...and do it WELL!

Tuesday, January 19, 2016

Telling Our Stories

It's time for us to start telling our stories...individuals with autism, their families, parents,  significant others need to speak out about our lived experiences in hopes of inspiring others, bringing awareness to autism and taking ownership of how autism is portrayed in the media.

Telling our story inspires someone else...it pushes for better acceptance and greater advocacy for autism. It also gives us a clearer perspective of the world around us by making us reach inward in order to draw out the emotions,  the truths, the realities that we experience every day.

Let's begin to tell our stories...

Tuesday, December 29, 2015

Invisible Disabilities: Why Can't People Understand?

It amazes me when people tell me, matter-of-factly,  that my children do not look disabled. I actually had an intense conversation with a friend where he blatantly told me that there was nothing wrong with my sons and if he was in a relationship with me, I would not be saying that my children have autism. He went on to point out that when he was a child, his mother told him that he could be anything he wanted to be. He was implying that a)I was somehow a bad mother for saying my children have autism and b) children with autism cannot also be successful.

The sad part about all of this is that it isn't uncommon for people to make these types of comments when a disability dies not manifest itself in a physical way. Saying little Johnny doesn't look disabled doesn't change the facts. Furthermore, it's insulting to a parent to make such statements.

I,  for one, have nothing to gain by saying my children have autism. I am not receiving any disability benefits ( but if I was, so what?) nor am I exhalted to some higher level of being. The fact is, all disabilities are not visible. People should be more respectful and practice more compassion when talking to others about their child's state of being. I never associate autism with anything negative nor do I want it to define who my children are as human beings.

We live in a society that still has a long way to go when it comes to disability awareness and acceptance...and I intend to remain on the frontlines when it comes to raising awareness.

Sunday, December 27, 2015

Raising Autism Awareness

Check out this video at https://youtu.be/rguyTZeeQv8 where children talk about their experiences with autism. Promoting awareness and acceptance of autism requires distributing information by way of individuals' experiences. First-hand accounts offer authentic hard-to-ignore facts that are often ignored in media depictions or second-hand observations.

Monday, December 21, 2015

Making a Difference: Disability Awareness

Let's make a difference in the coming new year to raise awareness and support acceptance of all disabilities. The simple fact that people with disabilities have to ASK to be understood says a lot about our society and the emphasis we place on " normal", "regular", and "typical".

So, as 2015 winds down, let's all make a commitment to take up the cause,  whether it's autism, down syndrome, cerebral palsy, etc. No matter how small, we can make changes happen! Looking forward to this next chapter of raising awareness!

Monday, November 23, 2015

Tomi Tells About His Day

Download at www.mystorybook.com/books/94361

Sunday, November 22, 2015

Dr. Marquis C. Grant Twitter

Check out Dr Marquis Grant (@DrmarquisGrant): https://twitter.com/DrmarquisGrant?s=09

Tomi Tells

I have truly enjoyed being able to start writing creatively again. My skills are a little rusty but I am determined to use whatever means available to continue to bring disability awareness into the mainstream.

Children with disabilities are not much different than their peers; they have the same feelings, needs and thoughts as anyone else. In fact, I often say it's becoming harder to tell the kids with disabilities from those without disabilities.

My goal as a mom, educator, advocate, writer and speaker is to create a new perspective of our children--one that is different from the one created by the media. I am doing it not only for my children, but all children who happily live their lives with and without a label attached.

Wednesday, November 18, 2015

My Life My Autism

Raising awareness and promoting acceptance for autism and other disabilities.