Autism & Gender

With so much emphasis on# boys with #autism,  we tend to forget about #girls who have also been diagnosed. Statistically, boys outnumber girls when it comes to autism #diagnoses but is this because of a gender relationship or are girls simply overlooked on the spectrum? Research suggests that girls are less likely to be diagnosed because their #symptoms do not manifest themselves in the same way as boys.

Girls could possibly fly under the radar because they are less active than boys and may simply be considered shy or withdrawn. This information alone could also indicate greater autism #prevalence rates that are being masked by gender biases within the medical community.

More focus needs to be placed on better diagnosis techniques specifically for girls that will allow for increased accuracy in diagnostic procedures.

Navigating Your Child's Disability-Conclusion

Navigating Your Child's Disability Diagnosis

Having a child diagnosed with a disability can be overwhelming. The range of emotions that accompany a diagnosis can range from deep depression to intense anger, with variations of other feelings in between. This blog post will conclude the discussion of the various stages of a disability. While the stages may vary for each individual, it is important that parents, caregivers and anyone vested in the life of an individual with autism recognize their own emotional journey and receive the appropriate levels of support.

Acceptance
Accepting the diagnosis may actually begin during the transition phase, where the parents or parent begins to take action in an effort to help their child. Acceptance, as chronicled in other stages of emotion (i.e. grief, divorce) generally indicates that the parents have found a middle ground in which they are able to come to terms with the diagnosis. Acceptance may also mark the point in which the parents or parent has redefined normalcy in their every day lives so that they are able to move forward. Parents may alter their schedules or routines to accommodate their child's disability. For example, one parent may decide to work part-time or quit working altogether so that he can attend to the needs of the child. Once their lives are restructured, the family as a unit can attempt to move forward for the greater good.

It is important to keep in mind that acceptance does not mean that the parents or the family is now going to live happily ever after because everyone is content. In fact, evidence of the other phases may crop up from time to time. It is perfectly logical to think that there might be periods of depression or anger even when acceptance has settled in. Something may even trigger a spark that makes the parent think that the disability may not be permanent, as in the initial phase. For these reasons, emphasis continues to be placed on a strong support system and a cohesive family unit in which everyone understands his or her role in the scheme of things. Non-disabled children need to be aware that while much of the focus is being placed on their disabled sibling, their role in the family remains immensely important. The same is true for parents who become so inundated with the daily living requirements that they lose focus of their commitment to one another.

Coping with a disability diagnosis is an individualized experience. Although there have been many who have experienced the range of emotions that accompany the parenting of a child with a disability, no one really knows exactly how you feel. Nevertheless, the amount of support that those around you can offer is immeasurable as long as you remain open to it. The most important thing for you, as a parent, to do is to allow yourself time to process your feelings and don't feel guilty about how you are feeling, as long as your ability to care for your child is not impacted. You should also know when to seek professional help if your emotions reach the point of severity or you are not able to properly care for your child. In the long run, it is what is in the best interest of the child that is key

Navigating Your Child's Disability Diagnosis Part 2

Navigating Your Child's Disability Diagnosis

Navigating Your Child's Disability Diagnosis

Having a child diagnosed with a disability can be overwhelming. The range of emotions that accompany a diagnosis can range from deep depression to intense anger, with variations of other feelings in between. The next several blog posts will be devoted to discussing various stages of a disability diagnosis.

Transition Phase

The transition phase is the period when parents begin to come to terms with their child's diagnosis. You, as a parent, may still experience feelings of depression, anger or resentment as in the initial phase, but now may be the time in which you are pushed into action. Many parents take on the role of advocate or they may become immensely protective of their child. You will likely want to gather and absorb as much information about your child's disability as possible to the point that you become overwhelmed with information overload. It may be a good idea to join a support group or meet with an advocate who can give you some guidance. Stress can come in some many shapes and forms and you certainly don't want to find yourself dealing with anything that is going to hamper your ability to work towards the best interest of your child.

During the transition period, as parents you  may begin to develop separate ideas about the direction that you should take in regards to meeting your child's needs. One of you may be lingering in the initial phase while the other has began easing into transition. It is critical that each of you acknowledges the other's present state and not allow your differences in opinion drive a wedge between you. The divorce rate among parents of children with disabilities has been suggested by some research to be above 50%, which makes it even more necessary for you, as a couple, to maintain some level of stability even in your state of disagreement. It may be a good idea to seek counseling to resolve some of your issues and have a neutral party help you work through those key areas in which you differ. The bottom line is that you want what's best for your child and that should be the commonality that creates a bond between the two of you.

Like other phases before and after a child's diagnosis, transition can last for an indefinite period depending on your ability to cope and stabilize your emotions. Some people experience multiple phases at once...for instance, a parent may be in the transition phase and take on an advocate role but still be in the initial phase, where they are in denial about the true nature or severity of their child's disability. It cannot be emphasized enough the importance of a support system. If you do not have friends or relatives who can give you the level of encouragement that you need, contact a local agency like Easter Seals or the Autism Society to get information about parent support groups in your area.

Navigating Your Child's Disability Diagnosis

Navigating Your Child's Disability Diagnosis

Having a child diagnosed with a disability can be overwhelming. The range of emotions that accompany a diagnosis can range from deep depression to intense anger, with variations of other feelings in between. The next several blog posts will be devoted to discussing various stages of a disability diagnosis.

Initial Phase

In the time leading up to diagnosis, it may be common for parents to feel a sense of denial about their child's difficulties. You may see developmental delays as awkward phases or conclude that your child is just being lazy. Even when a determination is made affirming the presence of a disability, you, as a parent, may still have a hard time excepting the diagnosis, possibly blaming themselves for poor parenting. 

During the initial phase of a diagnosis,  it is important to have a strong support system to encourage your emotional well-being. Everything changes during this period and parents must now adjust to their new reality. 

Some parents may remain in denial or in the initial phase for longer periods of time,  depending on how quickly they are able to transition from the shock of the diagnosis to a proactive role of deciding what is in the best interest of their child.

In the initial phase,  parents may also be overwhelmed by the uncertainty of the future. This is the time to remember that "one day at a time" is the best mantra to live by. The more overwhelmed you, as a parent, become the greater your stress levels,  which will impact your ability to take adequate care of your family and yourself. Unless there is an urgent matter that needs immediate attention,  try to focus on the immediate needs for the time being.

Remember, a diagnosis is not the end of the world. Seek advice from others who have experienced raising a child with a disability. Their insights can help you more effectively navigate a world of uncertainty and provide you with a greater sense of comfort knowing that your child's life outcomes are not limited by a diagnosis. 

Early Signs of Autism

#autismawareness

Play Dates and Children with Autism

AUTISM & SAFETY

As the summer months approach, it is important for parents to have an action plan to keep their children happy and healthy. Check out my website to read more about #autism and wandering to learn how parents can take precautionary measures in order to increase their children's safety. www.mylifemyautism.com